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  • IF - Folate
    or have spina bifida themselves should take a prescription level of 4000 mcg 4 0 mg of folic acid More about folic acid What is folic acid What does folic acid do Who needs folic acid How much folic acid do I need What is folic acid Folic acid helps you build healthy cells Folic acid is a water soluble B vitamin This means folic acid does not stay in your body for very long so you need to take it every day Taking folic acid is something you need to do every day just like you read the newspaper get ready in the morning eat lunch or relax in the evening What does folic acid do Folic acid helps your body build healthy cells It is important to get in the habit of taking a vitamin with folic acid every day so that your body has enough when you need it Folic acid is most important when your body is building lots of new cells like before and during pregnancy Folic acid reduces the risk of serious birth defects like spina bifida Spina bifida is a birth defect that happens when a baby s spine does not close all the way Some birth defects happen very early in pregnancy even before a woman knows that she is pregnant That is why it is important to get enough folic acid every day Taking folic acid before and during early pregnancy reduces the risk of spina bifida and other serious birth defects up to 70 There are other reasons for everyone to get enough folic acid every day Folic acid might also improve heart health and help prevent some cancers Who needs folic acid Everyone Just about everyone needs to take a vitamin with folic acid every day Folic acid is

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  • IF - Human rights
    to affect people with Spina Bifida and Hydrocephalus and their families and is cooperating with other NGOs to defend the rights of people with disabilities worldwide IF focuses in particular on Human rights and inclusion of people with spina bifida and or hydrocephalus The rights of children with spina bifida and or hydrocephalus in developing countries Prevention and issues related to bio ethics and prenatal diagnosis Interesting links International Center

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  • IF - Developing countries
    Christian Medical Centre KCMC www kcmc ac tz in Moshi KCMC is a referral hospital and covers the following districts Moshi Rural Moshi Urban Mwanga and Hai and Arumeru and Karatu districts in Arusha The programme work trough CCBRT Kilimanjaro but help s also the families from the other regions At KCMC the IF Network created with Dr M Oneko at KCMC a neuro pediatric Clinic of Spina Bifida and Hydrocephalus Operative care and post operative follow up of children with Spina Bifida and or Hydrocephalus 31 hydrocephalus shunt operations and 4 closures of back Organisation of weekly neuro clinics and monthly continence clinics Follow up of children by multidisciplinary team Intensive follow up and training in continence management bladder and bowel of 52 children by team of paediatrician and 2 Spina Bifida nurses Training CBR and rehab staff on continence management 12 reached 2 special continence management training weeks for parents and children with a total of 22 parents reached Organisation of 7 parent meetings with 70 parents reached The parent group has democratic elected committee that plans and organises agenda independently but with support of the project management Participation in yearly IF African workshop Salaries paid by the programme top up for paediatrician and Spina Bifida nurse other partners Kijabe Kenya Bethany Kids at Kijabe Hospital Bethany Kids at Kijabe Hospital is the children s ward of Kijabe hospital It has a 46 bed capacity and has become the referral hospital in Kenya for neurological patients The hospital has 13 outreach clinics as far as Dadaab North of Kenya border with Somalia 90 of their patients have Spina Bifida and Hydrocephalus Operative care and post operative follow up of children with Spina Bifida and or Hydrocephalus 391 hydrocephalus shunt operations and 195 closures of back Organisation of Spina Bifida and or Hydrocephalus clinics and mobile clinics in 14 areas spread over the country Follow up of children by multidisciplinary team Intensive follow up and training in continence management bladder and bowel of 101 children by team of specialised Spina Bifida nurses 1 special continence management training session for parents and children 50 reached and professionals 8 reached Organisation of 31 local parent meetings spread over 4 sites Nairobi Naivasha Mombassa and Joytown The leadership of the groups plan the agendas of the meetings with support from the project management Provision of folic acid to all mothers in the project Participation in yearly IF African workshop Salaries paid by the programme 4 Spina Bifida nurses other partners Mbale Uganda CURE Children s Hospital Uganda The CURE Children s Hospital of Uganda has become the referral hospital for Spina Bifida and Hydrocephalus in Uganda It works closely together for follow up of the children operated with the Katalemwa Cheshire Homes of Kampala in Kampala Uganda Focus has been on treatment of and research on Hydrocephalus CURE Children s Hospital of Uganda became the expert on alternative surgery of Hydrocephalus with ETV making with an endoscope a natural bypass of the

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  • IF - Newsroom
    list You should keep messages brief and to the point If you have a long document post a description on the ListServ and offer to send it to those who are interested If you have a problem with some of the messages email the list moderators or the person sending the messages Refrain from sending complaints to the entire group Avoid using all capital letters in your messages This is considered the same as SHOUTING and is not appreciated by others Most importantly remember that nothing is ever confidential or private when using the web to communicate Double check your message before sending If it contains personal or confidential information it might be best to use another method Anyone who does not stick to these rules will initially be contacted directly off the list and asked to ensure they observe the rules in future If they continue to ignore the rules after that they could ultimately be removed from the ListServ More articles 7 02 2008 IF international ListServ 3 09 2008 Medicina e Persona Rimini Meeting 2008 2 06 2008 Endoscope installation at Hue Hospital Vietnam 2 03 2008 Dutch Health Council advices on optimal use of Folic Acid 12 02 2008 IF visit to the Ugandan Parliament 11 02 2008 Introducing Olivia Nakato 12 02 2008 The gift of Deep Experience 11 02 2008 Introducing Rebecca Nakitto 11 02 2008 IPATH training in M bale Uganda 17 01 2008 AVSI and IF cooperate in Uganda 12 11 2007 IF FFI meeting on mandatory fortification 25 10 2007 Luis Quaresma Portugal reports from Angola 11 10 2007 PRACTICAL DETAILS IF FFI MEETING ON PREVENTION 25 06 2007 Endoscopic Third Ventriculostomy in progress 21 06 2007 Africa and our children 31 05 2007 Stories from Africa 11 05 2007 Clean up awareness campaign organized by SHAK Nairobi 9 05 2007 5th International NTD Conference 6 04 2007 IF training visit in Vietnam 6 04 2007 Training in the Go Vap orphanage 2 04 2007 WHO seeks disability experts through IF 20 02 2007 PhD study on the effect of Spina Bifida on parents 18 01 2007 Home visits in Moshi area 9 01 2007 Trolls and spina bifida 4 01 2007 The Independent Living Center and Munishwor Society of Katmandu Nepal established a special contest 22 12 2006 not feeling alone 13 12 2006 UN adopts Disability Convention 26 10 2006 Proposal for mandatory fortification of bread approved 25 10 2006 Conference Medicina e Persona Italy 19 10 2006 article Clementina Isimbaldi for the Italian newspaper Libero 16 10 2006 Dear Friends of CCBRT 10 10 2006 without creating an NGO island 10 10 2006 Short report from Poland 10 10 2006 Preventing Spina Bifida through Folic Acid Flour Fortification 4 09 2006 Dutch physicians succeeded in bringing back feeling in penis 23 08 2006 Elections are Congo s hope 7 07 2006 Resolution on active termination of life of newborn children with impairements and the right to live 12

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  • IF - Forum
    português italiano home search sitemap contact disclaimer About IF Spina Bifida Hydrocephalus Pregnancy Folate Human rights Developing countries Newsroom Forum Links Forum Forum new topic Subject Author Replies Last post

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  • IF - Links
    http www faisbi it Associazione Spina Bifida Italia ASBI http www asbi info Japan Spina Bifida Association of Japan Jersey The Jersey Association for Spina Bifida Hydrocephalus JASBAH http www jasbah org Luxembourg Association pour le Spina Bifida a s b l http www info handicap lu spinabifida index html the Netherlands BOSK Work Group Spina Bifida Hydrocephalus http www bosk nl Northern Ireland Northern Ireland Association for Spina Bifida and Hydrocephalus www spinabifida ni org Norway Ryggmargsbrokk og hydrocephalusforeningen http www ryggmargsbrokk org Poland Stowarzyszenie Chorych z Przepuklin Oponowo Rdezeniow R P ASBP http spinabifida w interia pl Portugal Associação Spina Bifida e Hidrocefalia de Portugal ASBIHP http www asbihp org Scotland Scottish Spina Bifida Association SSBA http www ssba org uk Slovakia Slovenská spoločnos pre spina bifida a alebo hydrocefalus o z http www sbah sk Spain Federación Española de Asociaciones de Espina Bífida e Hidrocefalia FEBHI http www febhi org Asociacion de Padres con Hijos Espina Bifida APHEB http www gencat net entitats apafeb htm Federació D Espina Bífida I Hidrocefàlia Comunitat Valenciana http www espinabifida fundacion org febhcv html Federación de Asociaciones de Espina Bífida de Andalucía http www faeba es guia distrito Espina bífida http jdelpino iespana es Sweden RBU http www rbu se Switzerland Schweizerische Vereinigung Spina Bifida und Hydrocephalus SBH www spina hydro ch Turkey Spina Bifida Derneģi Spina Bifida Dernegi Ege Universitesi Tip Fakultesi Cocuk Cerrahisi AD United Kingdom Association for Spina Bifida and Hydrocephalus ASBAH http www asbah org USA Spina Bifida Association of America SBAA http www sbaa org Hydrocephalus Association http www hydroassoc org Colorado Spina Bifida Association http www coloradospinabifida org Venezuela Asociación Venezolana de la Espina Bífida Spina Bifida and Hydrocephalus related links The Children and Adults with Spina Bifida website the focus of this site is myelomeningocele the most severe form of spina bifida Spina Bifida Research Bibliography Greet Mommen medical illustrations Scientific illustrations on Spina Bifida Right under my nose A story for children with Spina Bifida 2006 Childrens Hospital Los Angeles stonian Chamber of Disabled People www epikoda ee Support group for people with spina bifida alt support spina bifida Hydrocephalus Foundation aims to contribute emotional support to people with hydrocephalus and their family Ryans Page Ryan was born with hydrocephalus at 23 weeks http www cocemfe es Confederación Coordinadora Estatal de Minusválidos Físicos de España http www caritas es Cáritas Española http www cepes es La Confederación Empresarial Española de Economía Social CEPES http www spinabifidaitalia it Italian website dedicated to spina bifida Chat support and discussion groups Scandinavian hydrocephalus chat group http uk groups yahoo com group hydrochat US based support group for parents raising children with spina bifida www spinabifidasupport com Brazilian Spina Bifida and Hydrocephalus discussion group http br groups yahoo com group listadaespinhabifida Disability General European Disability Forum http www edf feph org PACER Center Champions for children with disabilities RADAR Royal Association for Disability and Rehabilitation HealthWrights is a non profit organization committed to advancing the health basic

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  • IF - Search
    italiano home search sitemap contacto disclaimer Acerca de IF Espina Bifida Hidrocefalia Embarazo Folate Derechos humanos Paises en desarrollo Noticias Foros Conecciones Search Search Enter your search term here subscribirse

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  • IF - Sitemap
    Endoscopic Third Ventriculostomy ETV Hidrocefalia en paises en desarrollo Vivir con hidrocefalia Testimonios Embarazo Estar embarazada con un niño con Espina Bifida e Hidrocefalia Viviendo con Espina Bifida e Hidrocefalia historias Declaración de politica de IF Mothers and fathers with Spina Bifida and Hydrocephalus Folate Folate Derechos humanos Introducción Reglas estandar para personas discapacitadas Resolución de la EDF Madrid Diagnostico prenatal y terminación del embarazo Derechos humanos y diagnostico prenatal

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