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  • IF - Newsroom
    head circumference and record its result in the leaflet created by IF What was very interesting on that leaflet is that they could see directly if the head circumference was normal or abnormal while taking the measurement Detect abnormal signs by too high CSF pressure This should be a systematic follow up The next training will be given on April 27 theoretical and demonstration of CIC by a child who was operated for Spina bifida and who is now incontinent The other training will be focused on pressure sore management especially with severe Hydrocephalus which quickly causes pressure sores text from HI More articles 7 02 2008 IF international ListServ 3 09 2008 Medicina e Persona Rimini Meeting 2008 2 06 2008 Endoscope installation at Hue Hospital Vietnam 2 03 2008 Dutch Health Council advices on optimal use of Folic Acid 12 02 2008 IF visit to the Ugandan Parliament 11 02 2008 Introducing Olivia Nakato 12 02 2008 The gift of Deep Experience 11 02 2008 Introducing Rebecca Nakitto 11 02 2008 IPATH training in M bale Uganda 17 01 2008 AVSI and IF cooperate in Uganda 12 11 2007 IF FFI meeting on mandatory fortification 25 10 2007 Luis Quaresma Portugal reports from Angola 11 10 2007 PRACTICAL DETAILS IF FFI MEETING ON PREVENTION 25 06 2007 Endoscopic Third Ventriculostomy in progress 21 06 2007 Africa and our children 31 05 2007 Stories from Africa 11 05 2007 Clean up awareness campaign organized by SHAK Nairobi 9 05 2007 5th International NTD Conference 6 04 2007 IF training visit in Vietnam 6 04 2007 Training in the Go Vap orphanage 2 04 2007 WHO seeks disability experts through IF 20 02 2007 PhD study on the effect of Spina Bifida on parents 18 01 2007 Home visits in Moshi area 9 01 2007 Trolls and spina bifida 4 01 2007 The Independent Living Center and Munishwor Society of Katmandu Nepal established a special contest 22 12 2006 not feeling alone 13 12 2006 UN adopts Disability Convention 26 10 2006 Proposal for mandatory fortification of bread approved 25 10 2006 Conference Medicina e Persona Italy 19 10 2006 article Clementina Isimbaldi for the Italian newspaper Libero 16 10 2006 Dear Friends of CCBRT 10 10 2006 without creating an NGO island 10 10 2006 Short report from Poland 10 10 2006 Preventing Spina Bifida through Folic Acid Flour Fortification 4 09 2006 Dutch physicians succeeded in bringing back feeling in penis 23 08 2006 Elections are Congo s hope 7 07 2006 Resolution on active termination of life of newborn children with impairements and the right to live 12 04 2006 UK wants to improve folate status young women 4 04 2006 Update on IF s Campaign for Mandatory Food Fortification 31 03 2006 CIC treatment in Vietnam 30 03 2006 Update on the IF Conference in Helsinki 28 02 2006 1st national update on Spina Bifida and Hydrocephalus 19 01 2006 New study comparing two hydrocephalus treatments

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  • IF - Newsroom
    Bifida on parents 18 01 2007 Home visits in Moshi area 9 01 2007 Trolls and spina bifida 4 01 2007 The Independent Living Center and Munishwor Society of Katmandu Nepal established a special contest 22 12 2006 not feeling alone 13 12 2006 UN adopts Disability Convention 26 10 2006 Proposal for mandatory fortification of bread approved 25 10 2006 Conference Medicina e Persona Italy 19 10 2006 article Clementina Isimbaldi for the Italian newspaper Libero 16 10 2006 Dear Friends of CCBRT 10 10 2006 without creating an NGO island 10 10 2006 Short report from Poland 10 10 2006 Preventing Spina Bifida through Folic Acid Flour Fortification 4 09 2006 Dutch physicians succeeded in bringing back feeling in penis 23 08 2006 Elections are Congo s hope 7 07 2006 Resolution on active termination of life of newborn children with impairements and the right to live 12 04 2006 UK wants to improve folate status young women 4 04 2006 Update on IF s Campaign for Mandatory Food Fortification 31 03 2006 CIC treatment in Vietnam 30 03 2006 Update on the IF Conference in Helsinki 28 02 2006 1st national update on Spina Bifida and Hydrocephalus 19 01 2006 New study comparing two hydrocephalus treatments in Africa 18 01 2006 IF President to attend First National Conference in India 18 01 2006 IF lobbies Irish MEP for mandatory flour fortification 19 12 2005 IF and its Dutch member BOSK lobby against the Groningen protocol 19 12 2005 Oldest person with spina bifida 15 11 2005 IF s African workshop 10 11 2005 Ireland s IASBAH and IF towards European Food Fortification 10 11 2005 Meeting with Dutch physicians de Jong and Kompanje 24 10 2005 BBC Radio 4 programme on spina bifida in Guatemala 18 10

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  • IF - Newsroom
    seriousness of the functional restrictions behavioural and emotional problems of the child a conflicting and controlling climate in the family and coping styles which are characterised by denial and looking for support This is a translation of the Dutch summary published on the Dutch website http www babywerk net For the entire PhD study read here On the link http opvoedendoejezo kro nl default aspx some personal experiences are presented in Dutch of people with spina bifida and their parents More articles 7 02 2008 IF international ListServ 3 09 2008 Medicina e Persona Rimini Meeting 2008 2 06 2008 Endoscope installation at Hue Hospital Vietnam 2 03 2008 Dutch Health Council advices on optimal use of Folic Acid 12 02 2008 IF visit to the Ugandan Parliament 11 02 2008 Introducing Olivia Nakato 12 02 2008 The gift of Deep Experience 11 02 2008 Introducing Rebecca Nakitto 11 02 2008 IPATH training in M bale Uganda 17 01 2008 AVSI and IF cooperate in Uganda 12 11 2007 IF FFI meeting on mandatory fortification 25 10 2007 Luis Quaresma Portugal reports from Angola 11 10 2007 PRACTICAL DETAILS IF FFI MEETING ON PREVENTION 25 06 2007 Endoscopic Third Ventriculostomy in progress 21 06 2007 Africa and our children 31 05 2007 Stories from Africa 11 05 2007 Clean up awareness campaign organized by SHAK Nairobi 9 05 2007 5th International NTD Conference 6 04 2007 IF training visit in Vietnam 6 04 2007 Training in the Go Vap orphanage 2 04 2007 WHO seeks disability experts through IF 20 02 2007 PhD study on the effect of Spina Bifida on parents 18 01 2007 Home visits in Moshi area 9 01 2007 Trolls and spina bifida 4 01 2007 The Independent Living Center and Munishwor Society of Katmandu Nepal established a special contest 22 12 2006 not feeling alone 13 12 2006 UN adopts Disability Convention 26 10 2006 Proposal for mandatory fortification of bread approved 25 10 2006 Conference Medicina e Persona Italy 19 10 2006 article Clementina Isimbaldi for the Italian newspaper Libero 16 10 2006 Dear Friends of CCBRT 10 10 2006 without creating an NGO island 10 10 2006 Short report from Poland 10 10 2006 Preventing Spina Bifida through Folic Acid Flour Fortification 4 09 2006 Dutch physicians succeeded in bringing back feeling in penis 23 08 2006 Elections are Congo s hope 7 07 2006 Resolution on active termination of life of newborn children with impairements and the right to live 12 04 2006 UK wants to improve folate status young women 4 04 2006 Update on IF s Campaign for Mandatory Food Fortification 31 03 2006 CIC treatment in Vietnam 30 03 2006 Update on the IF Conference in Helsinki 28 02 2006 1st national update on Spina Bifida and Hydrocephalus 19 01 2006 New study comparing two hydrocephalus treatments in Africa 18 01 2006 IF President to attend First National Conference in India 18 01 2006 IF lobbies Irish MEP for

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  • IF - Newsroom
    home to teach him Only a friend who is a Jehova witness came to me regularly for three months to teach me to read and write he says That s because he wanted me to become a member of his church But I didn t want to since I m a member of another church but I let him teach me I learnt to write the letters but I still cannot read He has had his wheelchair for two years And three years ago he learnt the art of self catheterization and bowel control During a screen test of the vision of all people in the region the situation of Ansigari was discovered by the health workers He had not had any contact with the medical world since he was one year old the time of the closure of his cele He leaked and smelled and had pressure wounds The smell had been the reason why he was not accepted in school People at the mobile eye health clinic referred him for catheterization training and the success of this training has changed life for the whole family All of us now have a new life since Ansigari is dry says the father Now he is accepted by everyone When people came to visit us before they ran away because of the smell Now Ansigari can manage his daily life without help and people appreciate him He looks after his younger siblings He is popular Children in the neighbourhood want to push his wheelchair when he goes to church on Sundays Ansigari has a little shop 75 metres from the simple home of the family A tiny wooden shack where he sells sodas salt and cigarrettes His stock is tiny almost none there is no fridge but he has got something to do a task He is optimistic about his future Both he and his father are engaged in the work of the parents group Ansigari would like to be given something to do by the Board of the parents and be included in their group to have the opportunity of speaking out on issues he cares for He was a candidate for the new Board that was just elected in Moshi at a parents meeting but he did not get enough votes maybe because of his reading and writing difficulties but most probably he will be invited to a Working Committee More articles 7 02 2008 IF international ListServ 3 09 2008 Medicina e Persona Rimini Meeting 2008 2 06 2008 Endoscope installation at Hue Hospital Vietnam 2 03 2008 Dutch Health Council advices on optimal use of Folic Acid 12 02 2008 IF visit to the Ugandan Parliament 11 02 2008 Introducing Olivia Nakato 12 02 2008 The gift of Deep Experience 11 02 2008 Introducing Rebecca Nakitto 11 02 2008 IPATH training in M bale Uganda 17 01 2008 AVSI and IF cooperate in Uganda 12 11 2007 IF FFI meeting on mandatory fortification 25 10 2007 Luis

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  • IF - Newsroom
    Council advices on optimal use of Folic Acid 12 02 2008 IF visit to the Ugandan Parliament 11 02 2008 Introducing Olivia Nakato 12 02 2008 The gift of Deep Experience 11 02 2008 Introducing Rebecca Nakitto 11 02 2008 IPATH training in M bale Uganda 17 01 2008 AVSI and IF cooperate in Uganda 12 11 2007 IF FFI meeting on mandatory fortification 25 10 2007 Luis Quaresma Portugal reports from Angola 11 10 2007 PRACTICAL DETAILS IF FFI MEETING ON PREVENTION 25 06 2007 Endoscopic Third Ventriculostomy in progress 21 06 2007 Africa and our children 31 05 2007 Stories from Africa 11 05 2007 Clean up awareness campaign organized by SHAK Nairobi 9 05 2007 5th International NTD Conference 6 04 2007 IF training visit in Vietnam 6 04 2007 Training in the Go Vap orphanage 2 04 2007 WHO seeks disability experts through IF 20 02 2007 PhD study on the effect of Spina Bifida on parents 18 01 2007 Home visits in Moshi area 9 01 2007 Trolls and spina bifida 4 01 2007 The Independent Living Center and Munishwor Society of Katmandu Nepal established a special contest 22 12 2006 not feeling alone 13 12 2006 UN adopts Disability Convention 26 10 2006 Proposal for mandatory fortification of bread approved 25 10 2006 Conference Medicina e Persona Italy 19 10 2006 article Clementina Isimbaldi for the Italian newspaper Libero 16 10 2006 Dear Friends of CCBRT 10 10 2006 without creating an NGO island 10 10 2006 Short report from Poland 10 10 2006 Preventing Spina Bifida through Folic Acid Flour Fortification 4 09 2006 Dutch physicians succeeded in bringing back feeling in penis 23 08 2006 Elections are Congo s hope 7 07 2006 Resolution on active termination of life of newborn children with impairements and the right to live 12 04 2006 UK wants to improve folate status young women 4 04 2006 Update on IF s Campaign for Mandatory Food Fortification 31 03 2006 CIC treatment in Vietnam 30 03 2006 Update on the IF Conference in Helsinki 28 02 2006 1st national update on Spina Bifida and Hydrocephalus 19 01 2006 New study comparing two hydrocephalus treatments in Africa 18 01 2006 IF President to attend First National Conference in India 18 01 2006 IF lobbies Irish MEP for mandatory flour fortification 19 12 2005 IF and its Dutch member BOSK lobby against the Groningen protocol 19 12 2005 Oldest person with spina bifida 15 11 2005 IF s African workshop 10 11 2005 Ireland s IASBAH and IF towards European Food Fortification 10 11 2005 Meeting with Dutch physicians de Jong and Kompanje 24 10 2005 BBC Radio 4 programme on spina bifida in Guatemala 18 10 2005 NEW Publication from the Spina Bifida Association 12 10 2005 Tom Baroch reports on the situation in Guatemala 28 09 2005 Training in Thailand 28 09 2005 Second conference Building Bridges 28 09 2005 A National Live Satellite Broadcast and Web

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  • IF - Newsroom
    at info saharagriha org np More articles 7 02 2008 IF international ListServ 3 09 2008 Medicina e Persona Rimini Meeting 2008 2 06 2008 Endoscope installation at Hue Hospital Vietnam 2 03 2008 Dutch Health Council advices on optimal use of Folic Acid 12 02 2008 IF visit to the Ugandan Parliament 11 02 2008 Introducing Olivia Nakato 12 02 2008 The gift of Deep Experience 11 02 2008 Introducing Rebecca Nakitto 11 02 2008 IPATH training in M bale Uganda 17 01 2008 AVSI and IF cooperate in Uganda 12 11 2007 IF FFI meeting on mandatory fortification 25 10 2007 Luis Quaresma Portugal reports from Angola 11 10 2007 PRACTICAL DETAILS IF FFI MEETING ON PREVENTION 25 06 2007 Endoscopic Third Ventriculostomy in progress 21 06 2007 Africa and our children 31 05 2007 Stories from Africa 11 05 2007 Clean up awareness campaign organized by SHAK Nairobi 9 05 2007 5th International NTD Conference 6 04 2007 IF training visit in Vietnam 6 04 2007 Training in the Go Vap orphanage 2 04 2007 WHO seeks disability experts through IF 20 02 2007 PhD study on the effect of Spina Bifida on parents 18 01 2007 Home visits in Moshi area 9 01 2007 Trolls and spina bifida 4 01 2007 The Independent Living Center and Munishwor Society of Katmandu Nepal established a special contest 22 12 2006 not feeling alone 13 12 2006 UN adopts Disability Convention 26 10 2006 Proposal for mandatory fortification of bread approved 25 10 2006 Conference Medicina e Persona Italy 19 10 2006 article Clementina Isimbaldi for the Italian newspaper Libero 16 10 2006 Dear Friends of CCBRT 10 10 2006 without creating an NGO island 10 10 2006 Short report from Poland 10 10 2006 Preventing Spina Bifida through Folic Acid Flour Fortification 4 09 2006 Dutch physicians succeeded in bringing back feeling in penis 23 08 2006 Elections are Congo s hope 7 07 2006 Resolution on active termination of life of newborn children with impairements and the right to live 12 04 2006 UK wants to improve folate status young women 4 04 2006 Update on IF s Campaign for Mandatory Food Fortification 31 03 2006 CIC treatment in Vietnam 30 03 2006 Update on the IF Conference in Helsinki 28 02 2006 1st national update on Spina Bifida and Hydrocephalus 19 01 2006 New study comparing two hydrocephalus treatments in Africa 18 01 2006 IF President to attend First National Conference in India 18 01 2006 IF lobbies Irish MEP for mandatory flour fortification 19 12 2005 IF and its Dutch member BOSK lobby against the Groningen protocol 19 12 2005 Oldest person with spina bifida 15 11 2005 IF s African workshop 10 11 2005 Ireland s IASBAH and IF towards European Food Fortification 10 11 2005 Meeting with Dutch physicians de Jong and Kompanje 24 10 2005 BBC Radio 4 programme on spina bifida in Guatemala 18 10 2005 NEW Publication from the Spina

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  • IF - Newsroom
    important for the parents In the Swedish group all felt that they as well as the Tanzanians share huge problems It is not only about material resources but about shared anxieties worries and having to live with these dark sides and yet be hopeful and loving as a parent More articles 7 02 2008 IF international ListServ 3 09 2008 Medicina e Persona Rimini Meeting 2008 2 06 2008 Endoscope installation at Hue Hospital Vietnam 2 03 2008 Dutch Health Council advices on optimal use of Folic Acid 12 02 2008 IF visit to the Ugandan Parliament 11 02 2008 Introducing Olivia Nakato 12 02 2008 The gift of Deep Experience 11 02 2008 Introducing Rebecca Nakitto 11 02 2008 IPATH training in M bale Uganda 17 01 2008 AVSI and IF cooperate in Uganda 12 11 2007 IF FFI meeting on mandatory fortification 25 10 2007 Luis Quaresma Portugal reports from Angola 11 10 2007 PRACTICAL DETAILS IF FFI MEETING ON PREVENTION 25 06 2007 Endoscopic Third Ventriculostomy in progress 21 06 2007 Africa and our children 31 05 2007 Stories from Africa 11 05 2007 Clean up awareness campaign organized by SHAK Nairobi 9 05 2007 5th International NTD Conference 6 04 2007 IF training visit in Vietnam 6 04 2007 Training in the Go Vap orphanage 2 04 2007 WHO seeks disability experts through IF 20 02 2007 PhD study on the effect of Spina Bifida on parents 18 01 2007 Home visits in Moshi area 9 01 2007 Trolls and spina bifida 4 01 2007 The Independent Living Center and Munishwor Society of Katmandu Nepal established a special contest 22 12 2006 not feeling alone 13 12 2006 UN adopts Disability Convention 26 10 2006 Proposal for mandatory fortification of bread approved 25 10 2006 Conference Medicina e Persona Italy 19 10 2006 article Clementina Isimbaldi for the Italian newspaper Libero 16 10 2006 Dear Friends of CCBRT 10 10 2006 without creating an NGO island 10 10 2006 Short report from Poland 10 10 2006 Preventing Spina Bifida through Folic Acid Flour Fortification 4 09 2006 Dutch physicians succeeded in bringing back feeling in penis 23 08 2006 Elections are Congo s hope 7 07 2006 Resolution on active termination of life of newborn children with impairements and the right to live 12 04 2006 UK wants to improve folate status young women 4 04 2006 Update on IF s Campaign for Mandatory Food Fortification 31 03 2006 CIC treatment in Vietnam 30 03 2006 Update on the IF Conference in Helsinki 28 02 2006 1st national update on Spina Bifida and Hydrocephalus 19 01 2006 New study comparing two hydrocephalus treatments in Africa 18 01 2006 IF President to attend First National Conference in India 18 01 2006 IF lobbies Irish MEP for mandatory flour fortification 19 12 2005 IF and its Dutch member BOSK lobby against the Groningen protocol 19 12 2005 Oldest person with spina bifida 15 11 2005 IF s African

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  • IF - Newsroom
    to petition the Committee on the Rights of Persons with Disabilities once all national recourse procedures have been exhausted This Committee of independent experts to be established after the Convention enters into force will receive periodic reports from States parties on progress made in implementing their obligations under the treaty Read here for the text of the Disability Convention More articles 7 02 2008 IF international ListServ 3 09 2008 Medicina e Persona Rimini Meeting 2008 2 06 2008 Endoscope installation at Hue Hospital Vietnam 2 03 2008 Dutch Health Council advices on optimal use of Folic Acid 12 02 2008 IF visit to the Ugandan Parliament 11 02 2008 Introducing Olivia Nakato 12 02 2008 The gift of Deep Experience 11 02 2008 Introducing Rebecca Nakitto 11 02 2008 IPATH training in M bale Uganda 17 01 2008 AVSI and IF cooperate in Uganda 12 11 2007 IF FFI meeting on mandatory fortification 25 10 2007 Luis Quaresma Portugal reports from Angola 11 10 2007 PRACTICAL DETAILS IF FFI MEETING ON PREVENTION 25 06 2007 Endoscopic Third Ventriculostomy in progress 21 06 2007 Africa and our children 31 05 2007 Stories from Africa 11 05 2007 Clean up awareness campaign organized by SHAK Nairobi 9 05 2007 5th International NTD Conference 6 04 2007 IF training visit in Vietnam 6 04 2007 Training in the Go Vap orphanage 2 04 2007 WHO seeks disability experts through IF 20 02 2007 PhD study on the effect of Spina Bifida on parents 18 01 2007 Home visits in Moshi area 9 01 2007 Trolls and spina bifida 4 01 2007 The Independent Living Center and Munishwor Society of Katmandu Nepal established a special contest 22 12 2006 not feeling alone 13 12 2006 UN adopts Disability Convention 26 10 2006 Proposal for mandatory fortification of bread approved 25 10 2006 Conference Medicina e Persona Italy 19 10 2006 article Clementina Isimbaldi for the Italian newspaper Libero 16 10 2006 Dear Friends of CCBRT 10 10 2006 without creating an NGO island 10 10 2006 Short report from Poland 10 10 2006 Preventing Spina Bifida through Folic Acid Flour Fortification 4 09 2006 Dutch physicians succeeded in bringing back feeling in penis 23 08 2006 Elections are Congo s hope 7 07 2006 Resolution on active termination of life of newborn children with impairements and the right to live 12 04 2006 UK wants to improve folate status young women 4 04 2006 Update on IF s Campaign for Mandatory Food Fortification 31 03 2006 CIC treatment in Vietnam 30 03 2006 Update on the IF Conference in Helsinki 28 02 2006 1st national update on Spina Bifida and Hydrocephalus 19 01 2006 New study comparing two hydrocephalus treatments in Africa 18 01 2006 IF President to attend First National Conference in India 18 01 2006 IF lobbies Irish MEP for mandatory flour fortification 19 12 2005 IF and its Dutch member BOSK lobby against the Groningen protocol 19 12 2005 Oldest

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