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  • IF - Newsroom
    2008 Medicina e Persona Rimini Meeting 2008 2 06 2008 Endoscope installation at Hue Hospital Vietnam 2 03 2008 Dutch Health Council advices on optimal use of Folic Acid 12 02 2008 IF visit to the Ugandan Parliament 11 02 2008 Introducing Olivia Nakato 12 02 2008 The gift of Deep Experience 11 02 2008 Introducing Rebecca Nakitto 11 02 2008 IPATH training in M bale Uganda 17 01 2008 AVSI and IF cooperate in Uganda 12 11 2007 IF FFI meeting on mandatory fortification 25 10 2007 Luis Quaresma Portugal reports from Angola 11 10 2007 PRACTICAL DETAILS IF FFI MEETING ON PREVENTION 25 06 2007 Endoscopic Third Ventriculostomy in progress 21 06 2007 Africa and our children 31 05 2007 Stories from Africa 11 05 2007 Clean up awareness campaign organized by SHAK Nairobi 9 05 2007 5th International NTD Conference 6 04 2007 IF training visit in Vietnam 6 04 2007 Training in the Go Vap orphanage 2 04 2007 WHO seeks disability experts through IF 20 02 2007 PhD study on the effect of Spina Bifida on parents 18 01 2007 Home visits in Moshi area 9 01 2007 Trolls and spina bifida 4 01 2007 The Independent Living Center and Munishwor Society of Katmandu Nepal established a special contest 22 12 2006 not feeling alone 13 12 2006 UN adopts Disability Convention 26 10 2006 Proposal for mandatory fortification of bread approved 25 10 2006 Conference Medicina e Persona Italy 19 10 2006 article Clementina Isimbaldi for the Italian newspaper Libero 16 10 2006 Dear Friends of CCBRT 10 10 2006 without creating an NGO island 10 10 2006 Short report from Poland 10 10 2006 Preventing Spina Bifida through Folic Acid Flour Fortification 4 09 2006 Dutch physicians succeeded in bringing back feeling in penis 23 08 2006 Elections are Congo s hope 7 07 2006 Resolution on active termination of life of newborn children with impairements and the right to live 12 04 2006 UK wants to improve folate status young women 4 04 2006 Update on IF s Campaign for Mandatory Food Fortification 31 03 2006 CIC treatment in Vietnam 30 03 2006 Update on the IF Conference in Helsinki 28 02 2006 1st national update on Spina Bifida and Hydrocephalus 19 01 2006 New study comparing two hydrocephalus treatments in Africa 18 01 2006 IF President to attend First National Conference in India 18 01 2006 IF lobbies Irish MEP for mandatory flour fortification 19 12 2005 IF and its Dutch member BOSK lobby against the Groningen protocol 19 12 2005 Oldest person with spina bifida 15 11 2005 IF s African workshop 10 11 2005 Ireland s IASBAH and IF towards European Food Fortification 10 11 2005 Meeting with Dutch physicians de Jong and Kompanje 24 10 2005 BBC Radio 4 programme on spina bifida in Guatemala 18 10 2005 NEW Publication from the Spina Bifida Association 12 10 2005 Tom Baroch reports on the situation in Guatemala 28 09

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  • IF - Newsroom
    rooms available Rue des Eperonniers Spoormakersstraat 42 44 B 1000 Brussels info almahotel be www almahotel be Cost 115 a night for a single room 135 for double room breakfast included Check in check out from the hotels CHECK IN from 15 00 but luggage can be left at the hotel before that time CHECK OUT at 11 00 BOOKING CONFIRMATION If you are interested in a room in one of the three above mentioned hotels please send an email to pia wurzer ifglobal org mentioning the preferred hotel before actually proceeding with the payment You will then receive a response as soon as possible to let you know whether your preferred option is still available This way the limited number of rooms in the Aris and Alma hotel will not be overbooked Please note that the rooms in the three mentioned hotels need to be confirmed by us before Friday 19 October 2007 More articles 7 02 2008 IF international ListServ 3 09 2008 Medicina e Persona Rimini Meeting 2008 2 06 2008 Endoscope installation at Hue Hospital Vietnam 2 03 2008 Dutch Health Council advices on optimal use of Folic Acid 12 02 2008 IF visit to the Ugandan Parliament 11 02 2008 Introducing Olivia Nakato 12 02 2008 The gift of Deep Experience 11 02 2008 Introducing Rebecca Nakitto 11 02 2008 IPATH training in M bale Uganda 17 01 2008 AVSI and IF cooperate in Uganda 12 11 2007 IF FFI meeting on mandatory fortification 25 10 2007 Luis Quaresma Portugal reports from Angola 11 10 2007 PRACTICAL DETAILS IF FFI MEETING ON PREVENTION 25 06 2007 Endoscopic Third Ventriculostomy in progress 21 06 2007 Africa and our children 31 05 2007 Stories from Africa 11 05 2007 Clean up awareness campaign organized by SHAK Nairobi 9 05 2007 5th International NTD Conference 6 04 2007 IF training visit in Vietnam 6 04 2007 Training in the Go Vap orphanage 2 04 2007 WHO seeks disability experts through IF 20 02 2007 PhD study on the effect of Spina Bifida on parents 18 01 2007 Home visits in Moshi area 9 01 2007 Trolls and spina bifida 4 01 2007 The Independent Living Center and Munishwor Society of Katmandu Nepal established a special contest 22 12 2006 not feeling alone 13 12 2006 UN adopts Disability Convention 26 10 2006 Proposal for mandatory fortification of bread approved 25 10 2006 Conference Medicina e Persona Italy 19 10 2006 article Clementina Isimbaldi for the Italian newspaper Libero 16 10 2006 Dear Friends of CCBRT 10 10 2006 without creating an NGO island 10 10 2006 Short report from Poland 10 10 2006 Preventing Spina Bifida through Folic Acid Flour Fortification 4 09 2006 Dutch physicians succeeded in bringing back feeling in penis 23 08 2006 Elections are Congo s hope 7 07 2006 Resolution on active termination of life of newborn children with impairements and the right to live 12 04 2006 UK wants to improve folate

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  • IF - Newsroom
    because of the adverse conditions but we would have been in serious trouble if we had cancelled the operation We arrived early at the hospital the next day and set up the equipment The operation didn t start until 11 30 so our estimate was right one case at the most The procedure was uneventful a classic ETV in a myelomeningocele child under much attention from the course delegates and the local surgeons National TV interviews ceremonies etc The local team wanted this operation as a landmark to show that peripheral hospitals can do high tech procedures A point was proven Early afternoon we left Hyderabad and drove through the moonscape of the superhighway back to Karachi dodging the trucks trash piling high and families digging We got back early evening I was to leave the next day back to Nottingham The whole thing makes you wonder We did one operation on a very sick child who will need massive support for the rest of its life and is unlikely to live very long There is nothing people have nowhere to live no clean water to drink Our high tech ETV may have proven a point locally but the problems are so vast and completely beyond our reach to understand or amend This was a necessary exercise To be confronted with the reality of the local conditions without media filter is an experience Neither Wassim nor me had an idea on the conditions in the country On the other hand if we hadn t done this course and subsequent operation who would have We have the expertise and are willing to spread this Should people like us turn our backs on this and wait until a basic standard is reached Small events like this can have bigger consequences like the discussion I had with Pierre Mertens at a restaurant in centre Brussels years back which sparked the initiative to set up Ben Warf in Uganda So it is worthwhile The small difference we made may set things in motion and we may have accomplished more than we are aware of It took me a while to recover from this trip I couldn t shake the images of the overwhelming poverty and I still see families digging through trash along the road Shortly after I left Karachi riots started and people were shooting machine guns in the streets In Hyderabad one sick child had an ETV I m not sure what happened to the colleague from Peshawar Michael Vloeberghs MD PhD Professor of Paediatric Neurosurgery Nottingham University Hospital United Kingdom More articles 7 02 2008 IF international ListServ 3 09 2008 Medicina e Persona Rimini Meeting 2008 2 06 2008 Endoscope installation at Hue Hospital Vietnam 2 03 2008 Dutch Health Council advices on optimal use of Folic Acid 12 02 2008 IF visit to the Ugandan Parliament 11 02 2008 Introducing Olivia Nakato 12 02 2008 The gift of Deep Experience 11 02 2008 Introducing Rebecca Nakitto 11 02 2008

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  • IF - Newsroom
    to see this family promises to see to it that the girl will have the opportunity to train self catheterization It s not enough just to demonstrate the clean intermittent catheterization CIC method through which the bladder is emptied with the help of a catheter on set times You also have to monitor that it functions in the home environment either the child must catherize herself from a certain age or when parents are at work the child must be helped by a neighbour or a relative When we ask Namutebi what she wishes for her future she answers smilingly I want money Lots of money Joanita Another girl that we met was Joanita in Kampala the capital of Uganda We were doing family visits and sat waiting for Joanita to come back from school Suddenly she appears among the trees walking very slowly straight backed and elegantly in silence She wears a neat red tartan dress and sits down on a wooden bench in front of the clay hut between her mother and Joan physiotherapist at Katalemwa Cheshire Home a rehabilitation centre on the outskirts of Kampala Joanita A couple of years ago Joanita was very sick she could hardly walk let alone go to school because of a hydrocephalus which had gradually grown worse ever since its appearance ten years ago But only now at 14 after a fortunate surgical ETV operation carried out in January 2006 she goes to the village primary school together with 8 year olds and shows great skill at reading writing and drawing She is rapidly catching up her favourite subject is science she has learnt a little English and her dream is to be a lawyer Joanita and her class mates These two girls Namutebi Milly and Joanita stay in our minds along with many more of our children They need the knowledge and training that come with the IF projects until it s integrated in the services of African caregivers Africa gives us a perspective on ourselves and the global injustice at the same time as people there convey a cordiality and lust for life that we in the north seldom express Renée Höglin and Urban Ekeblad More articles 7 02 2008 IF international ListServ 3 09 2008 Medicina e Persona Rimini Meeting 2008 2 06 2008 Endoscope installation at Hue Hospital Vietnam 2 03 2008 Dutch Health Council advices on optimal use of Folic Acid 12 02 2008 IF visit to the Ugandan Parliament 11 02 2008 Introducing Olivia Nakato 12 02 2008 The gift of Deep Experience 11 02 2008 Introducing Rebecca Nakitto 11 02 2008 IPATH training in M bale Uganda 17 01 2008 AVSI and IF cooperate in Uganda 12 11 2007 IF FFI meeting on mandatory fortification 25 10 2007 Luis Quaresma Portugal reports from Angola 11 10 2007 PRACTICAL DETAILS IF FFI MEETING ON PREVENTION 25 06 2007 Endoscopic Third Ventriculostomy in progress 21 06 2007 Africa and our children 31 05 2007 Stories from

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  • IF - Newsroom
    of Dar es Salaam often don t have a kitchen or bathroom but usually are equipped with sound systems DVD players and television sets from which blurts the immensely popular South American tele novella Rebecca awkwardly enough dubbed in English No television set in the small room where Saïdi and his grandmother live Both Saïdi s parents died from HIV and he is been depending upon his grandmother ever since In the meantime she has turned 65 in a country where the life expectancy for women is 46 but seems to handle her grandson in a very lively manner Each time when he is quiet a little too long she calls Mambo to which he replies accompanied with an irresistible smile Poa Swahili for Everything ok Everything great An ingenious sonar like system that cheers up the nearly blind Saïdi every time The atmosphere in the room is very nice until dad discovers during the medical part of the conversation that Saïdi is so constipated he hasn t passed stool in over two months After an unsuccessful attempt to immediately remedy this manually dad and the nurse go to the pharmacy for a laxative I remain behind alone with the grandmother and carefully ask how she obtains basic means Since she has no family other than her grandson she has to rely on gifts from neighbours who as you may understand live in more or less the same circumstances For a moment she s having a difficult time and wonders out loud what would come of her needy grandson if anything where to happen to her I don t think she really expected an answer from me but before I can express my consternation another Mambo Pao sounds through the room Free translation of original text by Maarten Mertens More articles 7 02 2008 IF international ListServ 3 09 2008 Medicina e Persona Rimini Meeting 2008 2 06 2008 Endoscope installation at Hue Hospital Vietnam 2 03 2008 Dutch Health Council advices on optimal use of Folic Acid 12 02 2008 IF visit to the Ugandan Parliament 11 02 2008 Introducing Olivia Nakato 12 02 2008 The gift of Deep Experience 11 02 2008 Introducing Rebecca Nakitto 11 02 2008 IPATH training in M bale Uganda 17 01 2008 AVSI and IF cooperate in Uganda 12 11 2007 IF FFI meeting on mandatory fortification 25 10 2007 Luis Quaresma Portugal reports from Angola 11 10 2007 PRACTICAL DETAILS IF FFI MEETING ON PREVENTION 25 06 2007 Endoscopic Third Ventriculostomy in progress 21 06 2007 Africa and our children 31 05 2007 Stories from Africa 11 05 2007 Clean up awareness campaign organized by SHAK Nairobi 9 05 2007 5th International NTD Conference 6 04 2007 IF training visit in Vietnam 6 04 2007 Training in the Go Vap orphanage 2 04 2007 WHO seeks disability experts through IF 20 02 2007 PhD study on the effect of Spina Bifida on parents 18 01 2007 Home visits in Moshi area 9

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  • IF - Newsroom
    the public particularly people living in Shauri Moyo on disability it has rejuvenated the support group by showing them just how much they can do by working as a team They saw the truth in the words that they put on the burner and t shirts that day Spinabifida and Hydrocephalus something can be done lets do it together More articles 7 02 2008 IF international ListServ 3 09 2008 Medicina e Persona Rimini Meeting 2008 2 06 2008 Endoscope installation at Hue Hospital Vietnam 2 03 2008 Dutch Health Council advices on optimal use of Folic Acid 12 02 2008 IF visit to the Ugandan Parliament 11 02 2008 Introducing Olivia Nakato 12 02 2008 The gift of Deep Experience 11 02 2008 Introducing Rebecca Nakitto 11 02 2008 IPATH training in M bale Uganda 17 01 2008 AVSI and IF cooperate in Uganda 12 11 2007 IF FFI meeting on mandatory fortification 25 10 2007 Luis Quaresma Portugal reports from Angola 11 10 2007 PRACTICAL DETAILS IF FFI MEETING ON PREVENTION 25 06 2007 Endoscopic Third Ventriculostomy in progress 21 06 2007 Africa and our children 31 05 2007 Stories from Africa 11 05 2007 Clean up awareness campaign organized by SHAK Nairobi 9 05 2007 5th International NTD Conference 6 04 2007 IF training visit in Vietnam 6 04 2007 Training in the Go Vap orphanage 2 04 2007 WHO seeks disability experts through IF 20 02 2007 PhD study on the effect of Spina Bifida on parents 18 01 2007 Home visits in Moshi area 9 01 2007 Trolls and spina bifida 4 01 2007 The Independent Living Center and Munishwor Society of Katmandu Nepal established a special contest 22 12 2006 not feeling alone 13 12 2006 UN adopts Disability Convention 26 10 2006 Proposal for mandatory fortification of bread approved 25 10 2006 Conference Medicina e Persona Italy 19 10 2006 article Clementina Isimbaldi for the Italian newspaper Libero 16 10 2006 Dear Friends of CCBRT 10 10 2006 without creating an NGO island 10 10 2006 Short report from Poland 10 10 2006 Preventing Spina Bifida through Folic Acid Flour Fortification 4 09 2006 Dutch physicians succeeded in bringing back feeling in penis 23 08 2006 Elections are Congo s hope 7 07 2006 Resolution on active termination of life of newborn children with impairements and the right to live 12 04 2006 UK wants to improve folate status young women 4 04 2006 Update on IF s Campaign for Mandatory Food Fortification 31 03 2006 CIC treatment in Vietnam 30 03 2006 Update on the IF Conference in Helsinki 28 02 2006 1st national update on Spina Bifida and Hydrocephalus 19 01 2006 New study comparing two hydrocephalus treatments in Africa 18 01 2006 IF President to attend First National Conference in India 18 01 2006 IF lobbies Irish MEP for mandatory flour fortification 19 12 2005 IF and its Dutch member BOSK lobby against the Groningen protocol 19 12 2005 Oldest

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  • IF - Newsroom
    installation at Hue Hospital Vietnam 2 03 2008 Dutch Health Council advices on optimal use of Folic Acid 12 02 2008 IF visit to the Ugandan Parliament 11 02 2008 Introducing Olivia Nakato 12 02 2008 The gift of Deep Experience 11 02 2008 Introducing Rebecca Nakitto 11 02 2008 IPATH training in M bale Uganda 17 01 2008 AVSI and IF cooperate in Uganda 12 11 2007 IF FFI meeting on mandatory fortification 25 10 2007 Luis Quaresma Portugal reports from Angola 11 10 2007 PRACTICAL DETAILS IF FFI MEETING ON PREVENTION 25 06 2007 Endoscopic Third Ventriculostomy in progress 21 06 2007 Africa and our children 31 05 2007 Stories from Africa 11 05 2007 Clean up awareness campaign organized by SHAK Nairobi 9 05 2007 5th International NTD Conference 6 04 2007 IF training visit in Vietnam 6 04 2007 Training in the Go Vap orphanage 2 04 2007 WHO seeks disability experts through IF 20 02 2007 PhD study on the effect of Spina Bifida on parents 18 01 2007 Home visits in Moshi area 9 01 2007 Trolls and spina bifida 4 01 2007 The Independent Living Center and Munishwor Society of Katmandu Nepal established a special contest 22 12 2006 not feeling alone 13 12 2006 UN adopts Disability Convention 26 10 2006 Proposal for mandatory fortification of bread approved 25 10 2006 Conference Medicina e Persona Italy 19 10 2006 article Clementina Isimbaldi for the Italian newspaper Libero 16 10 2006 Dear Friends of CCBRT 10 10 2006 without creating an NGO island 10 10 2006 Short report from Poland 10 10 2006 Preventing Spina Bifida through Folic Acid Flour Fortification 4 09 2006 Dutch physicians succeeded in bringing back feeling in penis 23 08 2006 Elections are Congo s hope 7 07 2006 Resolution on active termination of life of newborn children with impairements and the right to live 12 04 2006 UK wants to improve folate status young women 4 04 2006 Update on IF s Campaign for Mandatory Food Fortification 31 03 2006 CIC treatment in Vietnam 30 03 2006 Update on the IF Conference in Helsinki 28 02 2006 1st national update on Spina Bifida and Hydrocephalus 19 01 2006 New study comparing two hydrocephalus treatments in Africa 18 01 2006 IF President to attend First National Conference in India 18 01 2006 IF lobbies Irish MEP for mandatory flour fortification 19 12 2005 IF and its Dutch member BOSK lobby against the Groningen protocol 19 12 2005 Oldest person with spina bifida 15 11 2005 IF s African workshop 10 11 2005 Ireland s IASBAH and IF towards European Food Fortification 10 11 2005 Meeting with Dutch physicians de Jong and Kompanje 24 10 2005 BBC Radio 4 programme on spina bifida in Guatemala 18 10 2005 NEW Publication from the Spina Bifida Association 12 10 2005 Tom Baroch reports on the situation in Guatemala 28 09 2005 Training in Thailand 28 09 2005 Second conference Building Bridges

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  • IF - Newsroom
    Vietnam More articles 7 02 2008 IF international ListServ 3 09 2008 Medicina e Persona Rimini Meeting 2008 2 06 2008 Endoscope installation at Hue Hospital Vietnam 2 03 2008 Dutch Health Council advices on optimal use of Folic Acid 12 02 2008 IF visit to the Ugandan Parliament 11 02 2008 Introducing Olivia Nakato 12 02 2008 The gift of Deep Experience 11 02 2008 Introducing Rebecca Nakitto 11 02 2008 IPATH training in M bale Uganda 17 01 2008 AVSI and IF cooperate in Uganda 12 11 2007 IF FFI meeting on mandatory fortification 25 10 2007 Luis Quaresma Portugal reports from Angola 11 10 2007 PRACTICAL DETAILS IF FFI MEETING ON PREVENTION 25 06 2007 Endoscopic Third Ventriculostomy in progress 21 06 2007 Africa and our children 31 05 2007 Stories from Africa 11 05 2007 Clean up awareness campaign organized by SHAK Nairobi 9 05 2007 5th International NTD Conference 6 04 2007 IF training visit in Vietnam 6 04 2007 Training in the Go Vap orphanage 2 04 2007 WHO seeks disability experts through IF 20 02 2007 PhD study on the effect of Spina Bifida on parents 18 01 2007 Home visits in Moshi area 9 01 2007 Trolls and spina bifida 4 01 2007 The Independent Living Center and Munishwor Society of Katmandu Nepal established a special contest 22 12 2006 not feeling alone 13 12 2006 UN adopts Disability Convention 26 10 2006 Proposal for mandatory fortification of bread approved 25 10 2006 Conference Medicina e Persona Italy 19 10 2006 article Clementina Isimbaldi for the Italian newspaper Libero 16 10 2006 Dear Friends of CCBRT 10 10 2006 without creating an NGO island 10 10 2006 Short report from Poland 10 10 2006 Preventing Spina Bifida through Folic Acid Flour Fortification 4 09 2006 Dutch physicians succeeded in bringing back feeling in penis 23 08 2006 Elections are Congo s hope 7 07 2006 Resolution on active termination of life of newborn children with impairements and the right to live 12 04 2006 UK wants to improve folate status young women 4 04 2006 Update on IF s Campaign for Mandatory Food Fortification 31 03 2006 CIC treatment in Vietnam 30 03 2006 Update on the IF Conference in Helsinki 28 02 2006 1st national update on Spina Bifida and Hydrocephalus 19 01 2006 New study comparing two hydrocephalus treatments in Africa 18 01 2006 IF President to attend First National Conference in India 18 01 2006 IF lobbies Irish MEP for mandatory flour fortification 19 12 2005 IF and its Dutch member BOSK lobby against the Groningen protocol 19 12 2005 Oldest person with spina bifida 15 11 2005 IF s African workshop 10 11 2005 Ireland s IASBAH and IF towards European Food Fortification 10 11 2005 Meeting with Dutch physicians de Jong and Kompanje 24 10 2005 BBC Radio 4 programme on spina bifida in Guatemala 18 10 2005 NEW Publication from the Spina Bifida Association 12 10

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