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  • IF - Pregnancy
    southern part of Norway to the capital Oslo when I was 19 to become a silversmith At the same time I started my engagement in politics by joining the board of the youth party of Venstre The Social Liberal Party of Norway Since then I have been into politics on different levels and became Norway s Minister of Environmetal Protection in 1997 a post I held until March 2000 Travellling to different conferences and negotiations as a Norwegian minister on cruches I was very often met with the question Did you have a ski accident They were always smiling but when I replied No I was born like this the smile usually would disappear and they would say I m sorry I think this story underlines the bigges challenge we as people afflicted with disabilities face today Even though I was the same person and the chruches were the same their wiew of me would suddenly change when they got to know that I was born with SB and had not just broken my foot Today I run my own company giving lectures on environmental issues and I also run courses teaching people from organisations and interest groups how to get through to decision makers Not least however I give lectures on how the care system and society around us should be more adapted to our individual needs and made more accessible for us I live with my spouse and my cat in my own flat in Oslo I spend my spare time to see friends read listen to music go to movies theater and concerts Also I have traveled a lot not least in south eastern parts of Africa Today I have learned to ask for help and I have even got my own wheel chair to cover distances

    Original URL path: http://ifglobal.sitehosting.be/pregnancy.asp?lang=1&main=8&sub=2 (2016-04-30)
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  • IF - Pregnancy
    Links Being pregnant of a child with Spina Bifida and Hydrocephalus Living with Spina Bifida or Hydrocephalus portraits IF policy statement Mothers and fathers with Spina Bifida and Hydrocephalus Pregnancy IF policy statement At its 2000 Conference in Toulouse IF

    Original URL path: http://ifglobal.sitehosting.be/pregnancy.asp?lang=1&main=8&sub=3 (2016-04-30)
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  • IF - Pregnancy
    Bifida Hydrocephalus Pregnancy Folate Human rights Developing countries Newsroom Forum Links Being pregnant of a child with Spina Bifida and Hydrocephalus Living with Spina Bifida or Hydrocephalus portraits IF policy statement Mothers and fathers with Spina Bifida and Hydrocephalus Pregnancy

    Original URL path: http://ifglobal.sitehosting.be/pregnancy.asp?lang=1&main=8&sub=4 (2016-04-30)
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  • IF - Human rights
    to affect people with Spina Bifida and Hydrocephalus and their families and is cooperating with other NGOs to defend the rights of people with disabilities worldwide IF focuses in particular on Human rights and inclusion of people with spina bifida and or hydrocephalus The rights of children with spina bifida and or hydrocephalus in developing countries Prevention and issues related to bio ethics and prenatal diagnosis Interesting links International Center

    Original URL path: http://ifglobal.sitehosting.be/human_rights.asp?lang=1&main=9&sub=1 (2016-04-30)
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  • IF - Human rights
    and ethnic discrimination in employment education social security and healthcare access to good services and housing It also guarantees that victims of discrimination will be entitled to compensation in all the Member States A second Directive Council Directive 2000 78 EC prohibits discrimination in employment on grounds of religion and belief disability age and sexual orientation It also provides the basic rights of protection and it requires employers to make reasonable adjustments to cater for the needs of a person with a disability who is qualified to do the job in question The two Directives lay down standards which will provide a common level of protection against discrimination across the Union and which will require changes to the existing legislative framework in all Member states This package of measures forms part of an integral part strategy to promote an improved quality of life for European citizens By helping to eliminate discrimination and promote equal opportunities the Union contributes actively to the protection of fundamental rights and freedoms and to reducing the human and financial costs of exclusion Partly extracted from The Fight for equality by the European Commission DG Employment and social affairs Europe s first comprehensive Disability rights law But discrimination does not occur in the field of employment only Disabled people suffer from discrimination not only in the field of employment but also in areas of life like public transport education and access to goods and services which also have a huge impact on the employment potential of disabled people The field of employment is closely linked to several other areas such as for example education transportation and access to services and goods Therefore a legislation within the field of employment only is not enough In order for the disabled person to be an active member of the

    Original URL path: http://ifglobal.sitehosting.be/human_rights.asp?lang=1&main=9&sub=2 (2016-04-30)
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  • IF - Human rights
    order to provide a conceptual framework for action for the European Year of People with Disabilities 2003 the Madrid Declaration was proclaimed by more than 600 participants from 34 different countries during the European Congress of People with Disabilities held in Madrid in March 2002 The text adopted was the result of a consensus between the European Disability Forum the Spanish Presidency of the European Union and the European Commission

    Original URL path: http://ifglobal.sitehosting.be/human_rights.asp?lang=1&main=9&sub=3 (2016-04-30)
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  • IF - Human rights
    together with the Human Rights Committee for the European Disability Forum EDF on a European Resolution on prenatal diagnosis and termination of pregnancy for all disabilities This resolution was unanimously accepted at the EDF General Meeting in Athens in 2003 Literature Dr Carla Verpoorten medical adviser to IF prepared an extensive literature study updated until 2000 on the termination of pregnancy when the unborn child has Spina Bifida and or Hydrocephalus Dr Carla Verpoorten describes the evolution in thinking and attitudes towards having a child with Spina Bifida and or Hydrocephalus in her 2001 paper When Liesje was born The red file in her report questions society s tolerance and acceptance of people who are different Active termination of life of newborn babies with spina bifida In 2005 the Dutch Groningen Protocol was published in the New England Journal of Medicine giving Dutch doctors the possibility to actively end the life of a newborn child with a severe impairment The protocol is based on 22 cases all concerning Spina Bifida BOSK IF s Dutch member organisation wrote a letter to the Dutch government opposing against the Groningen Protocol and the proposal to institute a specific committee to judge if doctors

    Original URL path: http://ifglobal.sitehosting.be/human_rights.asp?lang=1&main=9&sub=4 (2016-04-30)
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  • IF - Human rights
    its medical limits Experience shows that when future parents get non judgmental counselling with access to the full range of issues relating to Spina Bifida and Hydrocephalus most are willing to fight for a optimal quality of life for their child Two examples in the United States some parents try to improve the medical outcome of their unborn child with Spina Bifida by foetal surgery in the womb In Queensland correct counselling including correct and balanced information proves that the majority of the parents choose to continue the pregnancy In more and more countries abortion is legally and socially acceptable and in many countries there is no time limit on legal abortion when the unborn child has an impairment Recently in the Netherlands in the case of Molenaars and last year Perruche in France Court decisions allowed wrongful life claims compensation being given to the person with a disability because he lives The right not to live has been accepted but the right to live seems to be non existent for the unborn child with a disability The foetus has no legal status Consideration should be given to provide protection for the unborn child under the UN Standard Rules and the convention of the right of the child Compensation awards in recent wrongful life claims make gynaecologists unsure and overactive in tests for prenatal diagnosis to detect all disabilities and propose abortion IF has major objections to this development and made Press Statements calling on politicians to amend legislation IF promotes correct imaging of disability in the media on national and international levels At the 12th International Conference for Spina Bifida and Hydrocephalus of IF in Toulouse in 2000 a resolution emphasised the right to live of people with Spina Bifida and or Hydrocephalus In 2002 this resolution was completed

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